ABOUT
Fight for Phoebe, Inc is a 501(c)(3) non-profit organization dedicated to helping local people and families with hemophagocytic lymphohistiocytosis (HLH) and other orphan diseases through:
Advocacy: Providing financial assistance through local providers and help families understand the diagnosis, treatment options, insuring that they and care providers understand their rights as patients.
​
Education: Increasing community awareness of the disease and treatments, to include bone marrow transplantation, especially for minorities.
Research: Work with national groups to advance research into histio diseases.
OUR STORY
We founded Fight for Phoebe in memory of Phoebe Jeong-Hui Ward. Phoebe was 8 years old when she was diagnosed with HLH (Hemophagocytic Lymphohistiocytosis), a rare and life threatening auto immune disorder.
​
Before becoming ill, Phoebe was an active and vibrant girl who loved her dog Baci, Tae Kwon Do, basketball, lacrosse, cheerleading, and having fun.
​
Phoebe passed away from HLH in February 2016 after more than 5 months in the hospital. Her final days were at home with her family.
Each year, Fight For Phoebe puts on a memorial run in September, which also happens to be Histio awareness month. Proceeds are donated to a histio-related research organizations including Cincinnati Children's Hospital, the HLH center of excellence.
​
In addition, we fundraise on or near Phoebe's birthday (December 7th) with proceeds going to Hospice of the Chesapeake's Chesapeake Kids program.