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Navigating the Storm: Our Family's HLH Odyssey, Part 2
The Battle Begins: Chemotherapy and Steroid Treatment After Phoebe's diagnosis with Hemophagocytic Lymphohistiocytosis (HLH) at...
Fight For Phoebe
Sep 14, 2023
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Navigating the Storm: Our Family's HLH Odyssey, Part 1
Life can take unexpected turns, and sometimes, you find yourself on a path you never could have imagined. That's precisely what happened...
Fight For Phoebe
Sep 5, 2023
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Unveiling September: Painting the Month Blue for Histiocytosis Awareness
As we step into September, I wanted to share something close to my heart. Histiocytosis Awareness Month is here, and it means more to us...
Fight For Phoebe
Sep 1, 2023
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Navigating the Journey: A Parent's Guide to Rare Diseases
Introduction When a child is diagnosed with a rare disease, it can feel like embarking on an uncertain journey. Parents are suddenly...
Fight For Phoebe
Jun 27, 2023
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